Son diagnosed with Epilepsy - Anyone have kids with this?

[ChrisPackit]

Looking for some reassurance I guess as my 6 year old son got diagnosed with Epilepsy after many months of tests.

Glad in a way that we've got to understand what's been happening, but heart broken about the potential life long medication and the impact on his life i.e. driving a car later in life etc etc.

Would be keen to hear from anyone on here who has had similar experiences or could offer any advice.

[EternalOptimist]

Looking for some reassurance I guess as my 6 year old son got diagnosed with Epilepsy after many months of tests.

Glad in a way that we've got to understand what's been happening, but heart broken about the potential life long medication and the impact on his life i.e. driving a car later in life etc etc.

Would be keen to hear from anyone on here who has had similar experiences or could offer any advice.

blooming heck. that's sh1t news mate

[speling bee]

Looking for some reassurance I guess as my 6 year old son got diagnosed with Epilepsy after many months of tests.

Glad in a way that we've got to understand what's been happening, but heart broken about the potential life long medication and the impact on his life i.e. driving a car later in life etc etc.

Would be keen to hear from anyone on here who has had similar experiences or could offer any advice.

No. The only thing I know is that it is important that the diagnosis and care is under a specialist paediatric neurologist. This is bound to be the case, but just on the off chance....

Sorry to hear it. My 4 year old is just awaiting a 99% certain diagnosis of coeliac disease, and I have to remind myself that I should be grateful on her behalf that it could be worse. You are a good man and it will be fine.

On a plus side, my mum is epileptic and it is entirely managed my medication and it doesn not affect her in any way, except she says off the booze.

[stek]

Son diagnosed with Epilepsy - Anyone have kids with this?

I used to get pre fit auras not the actual fit. I was tested and said I didn't have epilepsy and not to worry but I did have the auras so I'm sure I had it in some form. Does you son get them?

[Paddy]

Looking for some reassurance I guess as my 6 year old son got diagnosed with Epilepsy after many months of tests.

Glad in a way that we've got to understand what's been happening, but heart broken about the potential life long medication and the impact on his life i.e. driving a car later in life etc etc.

Would be keen to hear from anyone on here who has had similar experiences or could offer any advice.

Sorry about that. Worked with someone who had that. It meant having cups of tea thrown around and a foaming mouth during the fit. I suggest being open about it because most people understand and will be helpful.

[mudskipper]

Looking for some reassurance I guess as my 6 year old son got diagnosed with Epilepsy after many months of tests.

Glad in a way that we've got to understand what's been happening, but heart broken about the potential life long medication and the impact on his life i.e. driving a car later in life etc etc.

Would be keen to hear from anyone on here who has had similar experiences or could offer any advice.

Sorry to hear that.

I think, as long as it's under control (i.e. no seizures for n years) you're allowed to drive. So you've got a while to get sorted.

Hope you get the right treatment.

[mudskipper]

Sorry about that. Worked with someone who had that. It meant having cups of tea thrown around and a foaming mouth during the fit. I suggest being open about it because most people understand and will be helpful.

Yep - and it's important that people don't panic and know what to do to help him if it does happen.

[cailin maith]

Looking for some reassurance I guess as my 6 year old son got diagnosed with Epilepsy after many months of tests.

Glad in a way that we've got to understand what's been happening, but heart broken about the potential life long medication and the impact on his life i.e. driving a car later in life etc etc.

Would be keen to hear from anyone on here who has had similar experiences or could offer any advice.

God love him

[Robinho]

Sorry to hear that.

[Support Monkey]

Sorry to hear about that, you do feel so helpless i know, my son is type 1 diabetic.

Check out the programme on channel 4 (should be on 4OD) called The food Hospital.

Food Hospital - Channel 4

couple of weeks back they had a lad on there with epilepsy who was fitting nearly every hour, they changed his diet over a period of a few months this helped him alot to the point he was not fitting at all, worth a look